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The MOVR (neuroMuscular ObserVational Research) Data Hub is a patient registry established by the Muscular Dystrophy Association (MDA) that gathers and tracks longitudinal clinical data and will wed that information with genetic and real world data. MOVR is overseen by an IRB and all patients participating in MOVR must first be consented. MOVR also follows clinical data collection practices, including the use of Clinical Research Associates (CRAs) and formal training processes, provided by MDA, to ensure the highest quality data is gathered.
https://www.wellcaremedicare.org/
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https://www.kantimemedicare.us/
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