The Amgen Prize: Innovation for Patients with Rare Diseases
ChanjoBox4Care (C4C)
What is the name of your solution?
ChanjoBox4Care (C4C)
Provide a one-line summary of your solution.
ChanjoBox4Care is Accelerating Diagnosis for Rare Disease Patients Through Genetic Newborn Screening and Artificial Intelligence algorithms
In what city, town, or region is your solution team headquartered?
Nairobi, KenyaIn what country is your solution team headquartered?
In which countries do you currently operate?
What specific problem are you solving?
Although rare diseases collectively impact over 30 million people in the United States, most of the individual conditions have a low prevalence. Rare diseases affect one, or less than one, person in 2,000. This has resulted in a lack of research and expertise in this field. Diagnosis odysseys and uncertainty around experienced symptoms continue to place a heavy burden on people living with rare diseases, their families, care-takers, doctors and society as a whole.
There are more than 7,000 known rare diseases, conditions that affect one, or less than one, person in 2,000. These conditions, which collectively impact an estimated 27-36 million people across Africa and will affect one in 17 people during their lifetime, are often severe, multisystemic chronic diseases that put patients at risk of permanent organ damage and degeneration. Patients typically face an arduous journey to proper diagnosis, enduring on average eight years of countless doctor’s consultations, misdiagnoses and ineffective treatments. Lengthy diagnosis journeys place a heavy burden on patients, their families and society. They also hinder swift intervention – such as appropriate treatments or enrolment in clinical trials – and patient empowerment, realised through strategies such as lifestyle adjustments, family planning, genetic counselling and coping with the psychosocial and/or financial consequences of the condition.
Sickle cell disease (SCD) is the most common hemoglobinopathy encountered in Kenya. In the western part of the country, about 4.5% of children are born with SCD, and 18% of children are born with sickle cell trait. SCD has contributed significantly to the mortality rate in children younger than age 5 years, primarily because of late diagnosis, educational gaps among service providers, and lack of access to appropriate treatment. This silent epidemic touches numerous regions within Kenya, with Western, Nyanza, and Coastal areas particularly burdened, affecting 17 counties. Moreover, the phenomenon of migration and intermarriage has led to an increasing prevalence of the condition in other regions of the country – (Ministry of Health Kenya)
The vast majority of individuals with sickle cell disease (SCD) are born in sub-Saharan Africa, where easy access to high-intensity medical care may be limited to varying degrees.
The vast majority of the world’s population of children and adults with sickle cell disease (SCD) are born in low-resource settings, particularly in sub-Saharan Africa, the Caribbean, the Middle East, and India. As a result numerous well-established, cost-effective, and evidence-based strategies for managing SCD such as newborn screening, early education, vaccinations, screening for stroke prevention, and treatments with safe transfusions and hydroxyurea are often unavailable, leading to substantial morbidity and increased mortality.
ChanjoBox4Care is solving the problems in the western and costal Region of Kenya. By partnering with local hospitals and health research institutions, we aim to meet the pressing need for an accelerated rare diseases diagnosis framework. We offer a novel approach based on the following three central pillars: genetic newborn screening, digital technologies and solar powered refrigeration system for storing heat-sensitive medical items at patient homes and local hospitals.
What is your solution?
ChanjoBox4Care (C4C) is a medical software used as a search engine. It allows all users, specifically healthcare professionals, from symptoms, to identify potential rare diseases and direct them to the appropriate expert centers for diagnosis.
This connected medical device (class 1*) uses data and expertise from Blooming World International datasets so as to help health professions in identifying potential rare disease(s), providing access to the most up-to-date available knowledge on them, and also orientating professions to expert healthcare providers so as to shorten the journey to diagnosis.
In addition to its goal of developing the core early-diagnosis system, ChanjoBox4Care aims to establish a digital infrastructure and ecosystem to engage patients, parents of newborns and caregivers as equal decision-makers in the diagnosis process. The ecosystem will provide an open innovation platform, which allows for continuous data collection and information exchange, aiding the development of next-generation diagnostics and enabling physicians, patients and relatives to make informed decisions at an earlier stage. This will contribute to minimized disease progression, improved patient health and quality of life and an optimized use of healthcare resources.
Bundled with a portable solar fridge that can be used by the care givers to safely store and transport sensitive drugs and blood to remote, hard to reach and off-grid rural communities. The solution is also IoT-enabled; integrated with a communication and digital component that collects data in real-time and stores it on a cloud. This ensures that medicine is kept in the best storage conditions and can also be traced, to promote effective healthcare programs in rural communities.
C4C TM has 4 main features:
- Search by sign or symptom, helping the healthcare professional make the first step to identifying a potential rare disease.
- Find the expert centers able to diagnose and advise on care of the rare disease(s) identified.
- Access up-to-date knowledge on rare diseases through summary sheets
- Patient Empowerment: A digital infrastructure that allows patients and caregivers to be active participants in the diagnosis process. This includes providing educational resources and tools to help patients advocate for themselves. Additionally, users can request solar refrigeration systems for storing vaccines and other temperature-sensitive medical supplies
How ChanjoBox4Care (C4C) works
The user can enter symptoms in the application, which proposes a list of rare diseases as well as information on the rare disease, guidelines, symptoms, genes, publications, and the contact information of the expert centers that treat the identified rare disease.
CAC also offers a search engine to search for a specific rare disease, symptom, gene, or expert center.
RARE DISEASE LISTING AND SCORING
Automated Rare Disease Matching - Once symptoms are entered, the tool generates a list of rare diseases that correlate with the provided symptoms through a Scoring algorithm explained. This page is a comprehensive resource, containing various sections with specific information about the rare disease. This includes but is not limited to:
• Age of Onset
• Synonyms
• Hereditary Patterns
• Clinical Description
• Signs and Symptoms
• Expert Centers
• Genetic Information: - Genes: Identification of genes known to be associated with the disease.
Who does your solution serve, and in what ways will the solution impact their lives?
ChanjoBox4Care current target is the population in sub-Saharan Africa living in rural, off-gride and underserved communities. This accounts for approximately 80% of total population typically living in deep rural areas, slums, urban areas, shanty towns and poor peri-urban areas. This group is typically served by the government funded public health services.
Diagnosing rare diseases can be a long and frustrating process, often referred to as a "diagnostic odyssey." Patients with rare diseases in this communities see numerous specialists and undergo various tests before receiving a correct diagnosis. This delay hinders treatment and worsen patient outcomes.
ChanjoBox4Care serves (1) the undiagnosed rare disease patient population, the app offers access to current information on over 3,200 rare diseases.; (2) Healthcare Professionals , who benefit from earlier diagnosis.
To meet the needs of the population ChanjoBox4Care servers both the patients and Healthcare Professionals (HCPs), particularly those encountering patients with suspected rare diseases.
- Access to Medicine and vaccines - Many remote areas lack proper healthcare infrastructure, making it difficult for residents to access vaccines. ChanjoBox4Care addresses this need by bringing vaccines closer to the communities. The solution utilizes solar energy to power refrigerator, ensuring the safe storage of vaccines in areas without reliable electricity supply.
- Patient: The platform provides patients and families with access to the latest information on rare diseases. This would empower them to ask informed questions, collaborate with doctors, and make better decisions about their care. Early and accurate diagnosis is critical for managing rare diseases, and this kind of information access can significantly improve patient outcomes, Reducing the diagnostic journey both in time and travel costs
- Reduced Diagnostic Time: By offering a searchable database of over 1,200 rare diseases based on symptoms and access to expert centers, ChanjoBox4Care can help HCPs identify potential diagnoses faster, potentially leading to quicker treatment for patients.
- Improved Diagnostic Accuracy: Having a wider range of rare diseases to consider during differential diagnosis can decrease the chance of overlooking a less common condition.
- Enhanced Patient Care: A quicker and more accurate diagnosis allows HCPs to develop an appropriate treatment plan sooner, potentially improving patient outcomes and quality of life.
- Reduced Frustration: The "diagnostic odyssey" can be stressful and discouraging for both patients and HCPs. By streamlining the process, ChanjoBox4Care contribute to a less frustrating experience for everyone involved.
- Expert Center Locator: Once a potential rare disease is identified, ChanjoBox4Care can help find relevant expert centers that specialize in diagnosing and treating that specific disease.
In addition to its goal of developing the core early-diagnosis system, ChanjoBox4Care aims to establish a digital infrastructure and ecosystem to engage patients, parents of newborns and caregivers as equal decision-makers in the diagnosis process. The ecosystem provide an open innovation platform, which allows for continuous data collection and information exchange, aiding the development of next-generation diagnostics and enabling physicians, patients and relatives to make informed decisions at an earlier stage. This will contribute to minimized disease progression, improved patient health and quality of life and an optimized use of healthcare resources.
Which dimension of the Challenge does your solution most closely address?
Improve the rare disease diagnostic journey – reducing the time, cost, resources, and duplicative travel and testing for patients and caregivers.What is your solution’s stage of development?
ScaleWhat makes your solution innovative?
KNOW THE RARE FOR BETTER CARE, ChanjoBox4Care AI algorithms to identify patients at early disease onset via electronic health records and develop a repository of AI ‘symptom checkers’ to help patients who are in the midst of their diagnosis journeys – both supporting symptom-based diagnosis later in life. Each each time health workers communicate with each other they learn, meaning that health care delivery improves incrementally. C4C also enables a connected network of health workers that can help individual patients as a team.
ChanjoBox4Care has the potential to help patients benefit from precision diagnostics that lead to better care, meaningful hospital visits and a better overall quality of life – and to help strengthen healthcare systems through novel diagnostic tools and a resource-efficient technological infrastructure”
The project has established a digital infrastructure and ecosystem to engage patients, parents of newborns and caregivers as equal decision-makers in the diagnosis process. The ecosystem provides an open innovation platform, which allows for continuous data collection and information exchange, aiding the development of next-generation diagnostics and enabling physicians, patients and relatives to make informed decisions at an earlier stage.
Additional Innovation
- Patient-Centered Approach: C4C has revolutionized the diagnostic process for rare diseases by shifting the focus to patients. This empowers them to actively participate alongside healthcare professionals, transforming the traditional doctor-centric model.
- Open Innovation Platform: The C4C ecosystem functions as a unique platform where patients contribute anonymized data about their experiences. This rich data provides invaluable insights for researchers developing next-generation diagnostics for rare diseases, which are notoriously difficult to diagnose.
- Collaborative Diagnosis: The platform fosters collaboration between patients, caregivers, and physicians. By openly sharing information, patients can ask informed questions and be part of shared decision-making, leading to a faster and more accurate diagnosis.
Sustainability:
- The open data platform continuously collects and analyzes real-world patient experiences. This data can be used to refine the diagnostic tools and information available within the RDK ecosystem, ensuring it stays relevant and effective over time. Our goal is to improve health care in the public sector, so C4C is offered in that setting at no cost. However, we look for commercial partners to sustain and grow our efforts. An example is the rare disease division within Sanofi and the Sickle Cell Division within Novartis.
- Empowered Patients, Optimized Resources - By empowering patients to be active participants, the C4C ecosystem potentially reduce unnecessary tests and procedures. This not only benefits patients financially but also alleviates strain on healthcare resources, contributing to a more sustainable healthcare system in the long run.
- Improved Outcomes, Reduced Burden - Faster and more accurate diagnoses, facilitated by the shared data and collaborative approach, can lead to better patient outcomes. This reduces the burden of chronic illness on patients and the healthcare system, contributing to long-term sustainability.
The C4C App's potential lies in transforming from a healthcare professional tool into a sustainable and innovative ecosystem. This ecosystem empowers patients, improves diagnoses, and ultimately benefits the entire healthcare system by fostering collaboration and optimizing resource use.
Why are you applying to the Prize?
400 million people worldwide live with one of 7,000 rare diseases, 95% of which don’t have an FDA-approved treatment, let alone a cure. However, the fact that some rare diseases do have therapies that may not be able to cure, but are able to manage rare diseases. One such disease is Sickle Cell Disease (SCD). The problems to solve with SCD is to (1) improve the patient diagnostic journey (2) to link patients to treatment centers (3) Access to medicine, vaccines and blood by the patients and (4) provide data sets that can be used for research that can guide future interventions.While medical advances have reduced SCD child mortality in high-resource countries, most adults with SCD die before 50 years of age. Compared with other inherited conditions, such as hemophilia and cystic fibrosis, adults with SCD often become lost in the health care system and are not able to find optimal therapy. In a low resource setting the outcomes can be even worse.
Together with the AMGEN PRIZE we can change this! Firstly, expanding the use of ChanjoBox4Care in Kenya will increase the screening for SCD in additional rural and remote areas, linking them to treatment and reducing the diagnostic journey both in time and distance travelled. The increasing efficiencies have an additional benefit by helping to reduce the carbon footprint. Secondly, the partnership with Amgen and the data provide monthly will help facilitate publications and provide evidence of a high tech solution, adapted for a low resource setting that will provide a global example of how to deliver managed care for a rare disease.
Additionally, for us, it is honestly life-changing. We want to grow our reach and we find that most of our roadblocks are financial. A challenge with the current state of manufacturing for the fridges is that we are outsourcing a lot of production, making it more expensive. When we started this project, we wanted to provide not only an effective solution but also an affordable one. This prize will give us a unique opportunity to serve most of the Kenya rural families and local hospitals. We’ve seen considerable demand, and hospitals and patients have approached us from other countries across Africa, including Malawi, Mozambique, and Zimbabwe. Having the funds to produce this at scale will help us match the growing demand for the solution and create as much impact as possible.
Who is the Team Lead for your solution?
Elisha Caleb
How are you and your team well-positioned to deliver this solution?
ChanjoBox4Care team is uniquely positioned to deliver this innovative solution because we possess a deep understanding of the struggles faced by rare disease patients. Many members of our team have personal connections to the rare disease community, either through loved ones or prior experiences working with patient advocacy groups. This firsthand exposure has instilled a profound empathy for the challenges patients face in securing timely diagnoses. We also value diversity within our team, and strive to reflect the demographics of the communities we serve. This ensures a range of perspectives informing our development process, leading to solutions that are truly inclusive and accessible.
ChanjoBox4Care is a team of doctors, data scientists and healthcare executives with extensive personal experience and connection to the rare disease community. The Organization exists to develop technology to directly benefit rare disease patients.
The Team Lead- Our team is lead, Elisha Caleb, who brings a wealth of experience working with the rare disease community. He has more than 10 years’ experience working with local rare disease patients, with the government and international organizations. He is closely linked into the rare disease community – having worked at Tabaka Mission Hospital, Kenya, as well as leading several healthcare technology organizations focused in precision medicine. He is a regular speaker at rare disease conferences, and a contributor to many pieces of high impact research. This firsthand understanding informs the entire team's approach, ensuring empathy for the challenges patients face in securing timely diagnoses.
Dr. William Asher the lead Doctor and research at ChanjoBox4Care, He combined his lived experience as a rural doctor, working with more than 2 million marginalized rare disease patients in off-grid communities of Kenya and Tanzania. ChanjoBox4Care’s goal is to link 2 million health workers monthly. Around 1,65 million visitors per month from 20 countries to Know the rare for better care.
Alongside Elisha, ChanjoBox4Care’s leadership is deeply rooted in the rare disease community. Mendelian has a broad array of medical advisers with much patient experience. Our Board Chair have PhDs from Oxford University, USA and have done extensive work with patients and under-represented groups.
Rare disease experience: Since 2018 ChanjoBox4Care has expanded from 2 specialties to over 250 . In 2022 ChanjoBox4Care specifically worked in the field of rare diseases, with its work in Albinism and Hemophilia being selected for The 2023 Horizon Prize as a finalist . In 2023 the rare disease work expanded to Noma and Sickle Cell Disease. We are working towards adding Rett Syndrome.
At ChanjoBox4Care we believe in fostering strong partnerships with patient advocacy groups. Through collaboration, we leverage their expertise and insights to ensure that ChanjoBox4Care is truly meeting the needs of the communities it serves. By working hand-in-hand with patients and advocates, we have built a solution that empowers individuals with rare diseases and streamlines their journey towards accurate diagnosis and effective treatment.
What type of organization is your solution team?
Non-governmental Organization (NGO)
What are your impact goals for the next year and the next five years, and how will you measure and achieve them?
Short-Term Goals (2024-2025)
- Expanding Reach: ChanjoBox4Care aims to significantly expand its user base. Currently, ChanjoBox4Care offers information on over 3,200 rare diseases, aiming to empower tens of thousands of healthcare professionals worldwide. Our strategy involves partnering with medical professional associations and patient advocacy groups globally. This collaborative effort will raise awareness and encourage wider adoption of the platform, potentially reaching millions of healthcare professionals in the long term.
- Enhancing Accuracy: ChanjoBox4Care recognizes the importance of providing the most up-to-date and accurate information. We plan to enhance their knowledge base by collaborating with patient advocacy groups and rare disease experts. Additionally, integrating advanced AI algorithms will refine search accuracy. This two-pronged approach aims to identify potential rare disease diagnoses more effectively based on symptom input, leading to faster and more accurate diagnoses for a greater number of patients.
- Shorten Time to Diagnosis - Many Rare Diseases are degenerative, and treatments work best when the disease is caught early - before the damage has been done. Research conducted by the National Organization for Rare Disorders (NORD) indicates that it takes an average of 5-7 years to receive an accurate diagnosis for a rare disease. With newer gene therapies, patients with advanced disease will not be eligible. By focusing on shortening the time to diagnosis, we can improve patient outcomes and increase the likelihood of successful treatment interventions. ChanjoBox4Care will reach these goals through deployment at scale. By leveraging artificial intelligence and machine learning algorithms, ChanjoBox4Care can analyze large datasets of clinical data to aid in rare disease diagnosis.
- Enhancing medicine and Vaccine Storage Capacity: We aim to increase access to number of solar-powered refrigeration facilities to more than 500K patients and caregivers to accommodate their medicine and vaccines.
Long-Term Goals (2024-2029)
- Patient-Empowered Data: Looking ahead, ChanjoBox4Care envisions integrating patient-reported data. This wILL involve developing a secure platform where millions of patients with rare diseases can anonymously contribute their experiences and symptom data. Partnering with patient advocacy groups will be crucial to encourage widespread patient participation. By leveraging this real-world data, ChanjoBox4Care will further refine its search engine and pinpoint potential diagnoses with even greater accuracy, ultimately benefiting a much larger patient population.
- Personalized Care Management: ChanjoBox4Care 's vision extends beyond diagnosis. They plan to create personalized care management tools within the app. These functionalities will facilitate seamless communication and care coordination between patients, specialists, and primary care physicians. This streamlined approach will lead to more efficient and effective care management for a growing number of rare disease patients.
- Policy Advocacy: Finally, ChanjoBox4Care aspires to be a voice for the rare disease community. They plan to utilize anonymized data collected through the platform to highlight the challenges faced by patients. This data can then be used to advocate for policy changes that improve access to diagnosis, treatment, and research funding for rare diseases.
ChanjoBox4Care plays a pivotal role in creating a future where all rare disease patients receive the timely and effective care they
Describe in simple terms how and why you expect your solution to have an impact on the problem.
Imagine a world where rare disease patients don't face the hurdle of delayed diagnoses. ChanjoBox4Care is working towards this very goal. Our approach tackles the root cause of the problem - lack of awareness and resources for healthcare professionals. By expanding their reach and equipping doctors with a more comprehensive knowledge base and advanced search tools, ChanjoBox4Care empowers them to identify rare diseases faster. This translates to quicker diagnoses for patients, allowing them to receive the necessary interventions and specialist care earlier.
ChanjoBox4Care's impact goes beyond just diagnosis. We have created tools within the app to improve communication and collaboration between patients and their care team. Additionally, by collecting anonymized patient data, ChanjoBox4Care can advocate for policy changes that address the specific needs of the rare disease community, potentially leading to increased research funding and improved access to treatment.
ChanjoBox4Care's theory of change hinges on the idea that better informed healthcare professionals, empowered patients, and data-driven policy advocacy can create a healthcare system that delivers faster diagnoses, better care, and a brighter future for those living with rare diseases.
We have farther potentially collaborated with organizations working on solar-powered refrigeration solutions. By connecting patients and caregivers with these resources, thus providing a more comprehensive solution to the challenge of off-grid medication storage.
Which of the following categories best describes your solution?
A new business model or process that relies on innovation or technology to be successful
Please select the technologies currently used in your solution, if any:
Your elevator pitch:
If your solution has a website or an app, provide the links here:
http://blwi.org/human-health/neglected-tropical-diseases/2023/3/2/
How many people work on your solution team?
- 15 full time employees
- 9 staff on contract, supporting the company on clinical matters
How long have you been working on your solution?
6 years.
Tell us about how you ensure that your team is diverse, minimizes barriers to opportunity for staff, and provides a welcoming and inclusive environment for all team members.
At ChanjoBox4Care, we understand that a diverse and inclusive team is essential for achieving our mission. We are committed to creating a welcoming environment where everyone feels valued, respected, and empowered to contribute their unique skills and perspectives. Three core channels:
Building a Diverse Leadership Team
We are actively working to ensure our leadership team reflects the diversity of the rare disease community and the global healthcare landscape. This includes focusing on representation from different genders, ethnicities, and backgrounds.
Minimizing Barriers to Opportunity
We strive to minimize barriers to opportunity for all staff. This includes offering competitive salaries and benefits packages, fostering a flexible work environment, and providing professional development opportunities that cater to different learning styles. We are also committed to creating a recruitment process that is free from bias and attracts a diverse pool of talented individuals.
Cultivating a Welcoming and Inclusive Culture
We actively cultivate a welcoming and inclusive culture within ChanjoBox4Care. This involves:
- Unconscious Bias Training: We provide unconscious bias training to all staff members, raising awareness of our own biases and how they might impact our interactions with colleagues and users.
- Open Communication: We encourage open communication and feedback from all team members. We have implemented anonymous feedback channels and hold regular team meetings to ensure everyone feels comfortable expressing their ideas and concerns.
- Employee Resource Groups (ERGs): We are exploring the creation of Employee Resource Groups (ERGs) to provide a space for team members with shared identities or backgrounds to connect and support each other.
- Celebrating Diversity: We celebrate diversity through various initiatives, such as cultural events and recognition programs that acknowledge the unique contributions of all team members.
Goals for Continuous Improvement:
We recognize that building a truly diverse and inclusive workplace is an ongoing process. Here are some of our ongoing goals:
- Diversity Metrics: We are establishing clear metrics to track our progress on diversity and inclusion. This will allow us to measure our success and identify areas for improvement.
- Partnerships: We are exploring partnerships with organizations that focus on diversity and inclusion in the tech and healthcare sectors. This will allow us to learn from their expertise and access resources to further enhance our initiatives.
- Continuous Learning: We are committed to continuous learning on diversity, equity, and inclusion best practices. We will regularly review and update our strategies to ensure they remain effective in creating a workplace where everyone thrives.
What is your business model?
Value Proposition
- C4C provides a free web and mobile application designed to expedite diagnoses for rare diseases and optimize care coordination for patients.
- Healthcare professionals (doctors, nurses, specialists) gain access to a user-friendly search engine and comprehensive knowledge base on over 3,200 rare diseases. This empowers them to identify potential diagnoses faster and more accurately.
- Patients with rare diseases benefit from quicker diagnoses, leading to earlier interventions and specialist care, potentially improving their health outcomes.
- For patients and caregivers lacking access to reliable electricity, C4C aspires to partner with organizations providing solar-powered refrigerator solutions. This creates a more comprehensive approach to medication storage, particularly for those requiring specific temperature control.
Target Beneficiaries:
- Primary Caregivers: ChanjoBox4Care them to advocate for their loved ones and navigate the healthcare system more effectively.
- Healthcare Professionals: ChanjoBox4Care equips them with the knowledge and tools to diagnose rare diseases faster and provide better care to their patients.
- Patients with Rare Diseases: ChanjoBox4Care shortens the diagnostic odyssey, allowing them to receive the necessary treatment sooner and improve their quality of life.
Channels:
- C4C disseminates its mobile app and web platform through partnerships with medical professional associations and patient advocacy groups.
- Educational materials and awareness campaigns are conducted through online channels and healthcare conferences.
- Portable solar powered refrigeration units for sensitive medical equipment in off-grid community
Customer Relationships:
- C4C fosters relationships with users through in-app tutorials, FAQs, and a dedicated support team.
- We actively engage with partner organizations to ensure the platform remains relevant and addresses the evolving needs of the rare disease community.
Revenue Model:
- C4C core platform is currently free for users.
- Offering additional functionalities within the app for a subscription fee (e.g., advanced data analytics for healthcare institutions).
- Collaborating with pharmaceutical companies to provide targeted educational content for specific rare diseases.
- Seeking funding from government agencies or philanthropic organizations to support ongoing development and outreach efforts.
Impact Measurement:
- C4C tracks key metrics to measure its impact, including:
- Number of healthcare professionals registered on the platform.
- Number of Caregivers and patients with access to solar refrigeration systems
- Number of rare disease diagnoses facilitated by C4C.
- User feedback on the accuracy and effectiveness of the platform.
- Improvement in time to diagnosis for rare disease patients.
Do you primarily provide products or services directly to individuals, to other organizations, or to the government?
Individual consumers or stakeholders (B2C) (e.g. patients or caregivers)What is your plan for becoming financially sustainable, and what evidence can you provide that this plan has been successful so far?
Current State
ChanjoBox4Care currently offers its core platform free of charge to users. While this ensures accessibility for the global rare disease community, we recognize the need for a long-term strategy to achieve financial sustainability and support ongoing development.
Future Funding Plans
ChanjoBox4Care is exploring a multi-pronged approach to secure funding:
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Grants: We plan to actively seek grants from government agencies, philanthropic organizations, and foundations dedicated to healthcare and rare diseases. This allows us to leverage existing funding streams dedicated to supporting impactful solutions in the medical field.
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Partnerships: ChanjoBox4Care sees potential partnerships with pharmaceutical companies as a valuable revenue stream. These partnerships could involve co-creating targeted educational content for specific rare diseases, sponsored by the pharmaceutical company and accessible through the ChanjoBox4Care platform. This approach benefits both parties - ChanjoBox4Care receives financial support while pharmaceutical companies gain access to a wider audience of healthcare professionals and patients.
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Premium Features: Exploring the development of optional premium features within the app is another possibility. These features could include advanced data analytics for healthcare institutions or additional functionalities for patient care coordination. This provides value to those willing to pay a subscription fee while maintaining free access to the core functionalities for all users.
Early Signs of Success:
While still in the early stages of implementing these funding plans, ChanjoBox4Care has already seen positive signs:
- Strong Initial Interest: There has been significant interest from potential partners, including patient advocacy groups and medical professional associations. This initial engagement bodes well for future collaborations.
- Grant Potential: ChanjoBox4Care's focus on a critical gap in rare disease care - expedited diagnoses and improved medication storage solutions - positions them strongly to compete for grants dedicated to healthcare innovation and social impact.
- WFF Award. ChanjoBox4Care was awarded £200K for the AI Award , in recognition of its impactful innovation.
Solution Team
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Mr. Elisha Caleb Executive Director, Blooming World International
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Dr. Nabe Ipu BLOOMING WORLD INTERNATIONAL
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What is the name of your organization?
BLOOMING WORLD INTERNATIONAL