patient education X-PLAIN
There are approximately 7000 identified distinct rare diseases affecting around 350 million people worldwide.
In the European Union, a disease is deemed to be rare when it affects less than 1 per 2000 persons . In the United States, a disease is defined as rare when it affects fewer than 200,000 people at any given time.
Large amounts of health information can now be accessed online,and patients and caregivers are particularly likely to seek health information online.
Also Health information is an essential requirement for patient to manage various different aspects of health. Our goal is to provide trustworthy quality of health information.
X-Plain interactive tutorials and multimedia presentations engage patients and improve health outcomes educational processes
X-Plain’s library includes more than 6,000 texts 2,000 multimedia programs. Each topic is coded with common medical terms and coding standards X-Plain is published by the Patient Education Institute.
Many patients with a rare disease find themselves with unmet clinical needs due to a number of issues associated with access to clinical care and information .Patients with the same diagnosis may present differently because of genetic variations This can result in a delay to diagnosis, or misdiagnosis, because they cannot access specialists with knowledge of their disease .
Even after receiving a diagnosis, accessing therapeutic interventions and appropriate drugs may be difficult as treatment options maybe non existent or restricted and often costly.
An X-Plain tutorial is a multimedia presentation that covers a specific health topic. Each slide displays simplified text alongside related illustrations and animations. The text is fully narrated so patients can listen and read at the same time. Each patient can advance through the tutorial at his or her own pace. The programs maintain the patient's attention through multimedia, , and a variety of techniques based on adult learning research.
X-Plain tutorial is a multimedia presentation that covers a specific health topic other health materials Each slide displays simplified text alongside related illustrations and animations.
The tutorial asks the patient questions during the presentation to verify understanding. If the patient answers correctly, the concept is reinforced.
- An X-Plain tutorial is a multimedia presentation that covers a specific health topic. https://www.patient-education.com/editorial.html
- Each slide displays simplified text alongside related illustrations and animations. http://online.x-plain.com/client###/span/span###_F5_PUBWL.asp?SNT=MjQxMTczNjE0&CID=MTc0MQ==&CltName=V2VzdGNoZXN0ZXIgTGlicmFyeSBTeXN0ZW0=&IDN=X1dlc3RM&Media=Ug==&DL=
- The text is fully narrated so patients or health professionals can listen and read at the same time. Each patient can advance through the tutorial at his or her own pace. The programs maintain the patient's attention through multimedia, interactive questions, and a variety of techniques based on adult learning research. See an X-Plain tutorial in action.
- The X-Plain library includes thousands of tutorials in English, Spanish, and Arabic. They span the entire continuum of care, including acute and chronic care or patient with rare diseases. The Patient Education Institute publishes each health topic in 5 other instructional formats: videos, illustrated handouts, text, overviews, and test-your-knowledge quizzes. The variety of educational formats allows patients to select their preferred learning method.
- X-Plain offers more than 16,000 patient education items that can be delivered through a client's website, tablets, etc.
- The tutorial asks the patient questions during the presentation to verify understanding. If the patient answers correctly, the concept is reinforced.
The internet provides a powerful tool for patient seeking medical information. Health information includes information for staying healthy, preventing and managing diseases, and making other decisions related to health and health care. It includes information for making decisions about health products and health services.
It may be in the form of data, text, audio or video. Many patients with a rare disease find themselves with unmet clinical needs due to a number of issues associated with access to clinical care and information. There are approximately 7000 identified distinct rare diseases affecting around 350 million people worldwide .In the European Union, a disease is deemed to be rare when it affects less than 1 per 2000 persons .In the United States, a disease is defined as rare when it affects fewer than 200,000 people at any given time
The impact of rare diseases on a patient’s daily activities means individuals are dependent on families or carers to manage their everyday needs. This loss of autonomy can have a negative impact on their quality of life and access of quality of health information and decision making for their health.
Rare diseases can be chronically debilitating or life-threatening conditions, leading to a significant reduction in quality of life or quality of health information for both the patient and their families. Small patient populations and a relative scarcity of medical knowledge and specialists in rare diseases make it challenging to understand the burden of these diseases in patients. The importance of ensuring that the patients voice is central to clinical decision making is key to delivering, evaluating and understanding therapeutic interventions.
The Patient Education Institute (Patient education Xplain platform) helps healthcare organizations educate patients through the award-winning X-Plain products. X-Plain:
(1) Captures the patient's attention through interactive programs.
(2) Asks the patient questions to ensure they understand vital health messages.
(3) Documents the educational session in existing health IT systems.
X-Plain offers thousands of evidence-based health education topics in several languages. Each topic is available in different formats – such as videos, tutorials, and illustrated handouts – to suit the patient's individual preferences and learning style. For the past 24 years, the Patient Education Institute has helped healthcare organizations implement patient engagement systems that satisfy a variety of mission-critical needs.
Education and Behavior Modification We rely on behavior modification theories to develop our content. The Medical Advisory Board approves each health topic, and then we publish them in six educational formats:
1. Interactive Tutorials (Multimedia)
2. Video Presentations (Multimedia)
3. Interactive Quizzes (Multimedia)
4. Illustrated Handouts (Textual)
5. XML Database (Textual)
6. Overviews (Textual)
For instance Video Presentations
X-Plain videos are multimedia presentations that contain the same multimedia components as X-Plain tutorials, but without the interactive questions.
We help our clients:
• Improve outcomes by ensuring patient comprehension and compliance.
• Increase efficiency and save staff time.
• Engage the community with campaigns designed to promote public health and prevent disease.
• Increase patient experience and patient satisfaction scores.
• Manage the expectations of patients and their families to mitigate the risk of medical malpractice complaints and lawsuits.
- Meet regulatory requirements related to informed consent, discharge instructions, and meaningful use.
- Standardize health messages across the health system.
• Increase traffic on our clients’ websites and promote their brand names.
Our Approach
We help healthcare providers engage patients and ensure that they understand their treatment options and care instructions. Our solutions are known as X-Plain®.
Studies have shown that many patients do not read the handouts given to them, and when they do, they often don’t understand the information. Teach-back is a common way of verifying patient comprehension through face-to-face communication. X-Plain tutorials assist with the teach-back method by asking questions and providing interactive feedback. Our programs use multimedia presentations to support informed consent, provide discharge instructions, help with disease management, and promote public health.
What Is an X-Plain Tutorial?
An X-Plain tutorial is a multimedia presentation that covers a specific health topic. Each slide displays simplified text alongside related illustrations and animations. The text is fully narrated so patients can listen and read at the same time.
The tutorial asks the patient questions during the presentation to verify understanding. If the patient answers correctly, the concept is reinforced. If the patient answers incorrectly, the tutorial explains the concept again. Each patient can advance through the tutorial at his or her own pace. The programs maintain the patient's attention through multimedia, interactive questions, and a variety of techniques based on adult learning research. See an X-Plain tutorial in action.
Why Do Patients Prefer X-Plain?
Our end-users are patients and health consumers. Since 1995, hundreds of evaluation studies conducted independently by our clients have shown that more than 9 out of 10 patients appreciate X-Plain and wish all their doctors offered it.
Why do patients appreciate X-Plain? Here are the main reasons:
(1) Patients can see and hear the information in multiple modalities at once (text, narration, illustrations, and animations). Research shows this multiple-input approach improves the user's attention, comprehension, and retention of the material.
(2) The user controls the pace of learning – they can proceed at their own pace and return to previous slides for review. They can also turn off the narration to advance more quickly, if desired. If the patient becomes distracted, the presentation stops until he or she touches the screen.
(3) Patients gain confidence when they answer interactive questions correctly. Confident patients are more likely to ask their healthcare team questions and to point out possible medical errors.
(4) Patients feel less intimidated when they answer a question incorrectly in an electronic program than when they give an incorrect response to a nurse or doctor.
(5) Patients can see the health topic in the formats of their choice (video, multimedia tutorial, illustrated text, etc.).
- Unlock collaboration among patients, scientists, and health care providers to improve patient outcomes
Our solution provide digital inclusion and can help more than around 350 million people worldwide . An X-Plain tutorial is a multimedia program that explains a specific health topic in about 50 slides. Patients a advance through the presentation one slide at a time. Each slide displays simplified text with full narration. Illustrations and animations help them visualize the concepts presented.
At the end of each section, the tutorial asks questions to ensure understanding. The tutorial explains the answer and asks the question a second time. If the patient responds correctly, the quiz confirms the answer.
- Scale: A sustainable enterprise working in several communities or countries that is looking to scale significantly, focusing on increased efficiency.
Over the past 24 years, our clients have included a variety of public health stakeholders, such as:
• Community health centers.
• Drug stores.
• Medical device manufacturers.
- A new business model or process that relies on technology to be successful
Our product Patient education and x-plain platform can help many health professionals and patients . Our plan is to prove how can technology help people with rare diseases get the right care faster with accurate quality of health information .
Simplicity makes our solution innovative
See an X-Plain tutorial in action.
The X-Plain library includes thousands of tutorials in English, Spanish, and Arabic. They span the entire continuum of care, including acute and chronic care, procedures and discharge instructions, informed consent, rehab, and health promotion.
The Patient Education Institute publishes each health topic in 5 other instructional formats: videos, illustrated handouts, text, overviews, and test-your-knowledge quizzes. The variety of educational formats allows patients to select their preferred learning method.
X-Plain offers more than 16,000 patient education items that can be delivered through a client's website, tablets, EMR, patient portal, bedside TV system, and other channels.
For more than a decade, our partners have included organizations that provide:
- • Employee wellness programs.
- • Health information kiosks.
- • Health website development assistance.
- • Hospital bedside patient stations or TVs.
- • Hospital CCTVs.
- • Population health services.
Evolving industries that we work with include:
Evolving industries that we work with include:
- • Patient engagement companies and call centers.
- • Telehealth.
- • Care management.
- • Electronic medical records.
- • Online medical consultations.
- • Patient care.
- • Patient portals.
- • Point-of-care tablets.
The Patient Education Institute has developed a population health solution to engage health information consumers and thus improve health management, decision making, and outcomes. We offer this solution, X-Plain XML Database, to partners providing wellness products.
Our partners can integrate the X-Plain XML Database into their IT systems. The IT system uses X-Plain webservices to automatically assign topics based on employee health risk assessments or other criteria that the partner determines. The IT system can also track user completion and comprehension, which can be incorporated into an incentives program.
- Audiovisual Media
- Behavioral Technology
- Big Data
- Software and Mobile Applications
The X-Plain platform and encyclopedia has been used to more than 20 years and has no risks .
X-Plain Health Encyclopedia
The X-Plain Health Encyclopedia is designed for health websites and patient portals. It includes our full library, covering all medical specialties. For each health topic, the Encyclopedia provides an interactive tutorial, video, overview, full text, and illustrated handout.
Over the past 24 years, our clients have included a variety of public health stakeholders, such as:
- • Community health centers.
- • Drug stores.
- • Medical device manufacturers.
- • Patient-Centered Medical Homes (PCMH).
- • Pharmaceutical companies.
- • Public Libraries.
- • Rehabilitation centers.
- Women & Girls
- Elderly
- Urban
- Poor
- Low-Income
- Middle-Income
- 3. Good Health and Well-being
- 4. Quality Education
- 10. Reduced Inequality
- 11. Sustainable Cities and Communities
- Greece
- United Arab Emirates
The solution is product stage.
Target Audience
After 1 Year
After 5 year
Patients
100.000
1.000.000
Budget need
1 year . 150.000 Dollars
5 Year . 1.000.000 Dollars
Impact opportunity: We want to raise awareness to more many people to access quality of health information.
We do know that more than 350.000.000 people suffers from rare disease
Ensuring healthy lives and promoting well-being at all ages is essential to sustainable development. Currently, the world is facing a health crisis
unlike any other — COVID-19 is spreading human suffering, destabilizing the global economy and upending the lives of billions of people around the globe.
Major progress happen to improve the health of million of people. But more efforts are needed to fully eradicate a wide range of diseases and address many different persistent and emerging health issues. By focusing on providing more efficient funding of health systems,
improve quality of health information significant progress can be made in helping to save the lives of millions.
The main sustainable development goal is 3
Good Health and Well-being
- For-profit, including B-Corp or similar models
1. Moe A. Ajam, Ph.D.
Dr. Moe Ajam is co-founder and president of the Patient Education Institute.
2. Kleopatra Alamantariotou is a team leader of the project She received a Master in CITY University London in health informatics
3. Souheil F. Haddad, M.D.
4. Dean Gesme, M.D., FASCO, FACP, FACPE
- Moe A. Ajam, Ph.D. Dr. Moe Ajam is co-founder and president of the Patient Education Institute. Dr. Ajam has more than 32 years of experience designing educational software for startup companies.
- Kleopatra Alamantariotou
- studied the art of Midwifery in Athens Greece. She received a Master
degree in CITY University London in health informatics in 2008 another MSc degree from Middlesex University London in Midwifery in 2007. Also is CEO of Biomimicry Greece Research and Innovation Center, and active affiliate member in 22 countries in Singularity University. She is a member of the National Management Committee of European programs (COST EU Brussels) for more than 8 years, and has won many scholarships and prizes. She was a local leader of MIT hacking Medicine Athens in 2019 - Souheil F. Haddad, M.D. Dr. Souheil Haddad is co-founder and medical director of the Patient Education Institute.
- Dean Gesme, M.D., FASCO, FACP, FACPE Dr. Dean H. Gesme, Jr. is co-founder of the Patient Education Institute and is on the board of directors. Dr. Gesme is board certified in internal medicine, medical oncology. He has been the assistant principal investigator for multi-million dollar grants from the National Cancer Institute.
X-Plain for Patient Portals
X-Plain for Patient Portals gives patients a highly engaging experience within the patient portal. When users log into a patient portal, they gain access to patient-specific programs about their health conditions and any recent or scheduled procedures. Patients can also browse the X-Plain Health Encyclopedia for topics of interest. They can then read about the topic, watch a video, or complete an interactive learning session.
yes see team cvs
- Organizations (B2B)
Our product Patient education and x-plain platform can help many health professionals and patients . Our plan is to prove how can technology help people with rare diseases get the right care faster with accurate quality of health information .
Who & How We Help
Our main clients are health systems, hospitals, outpatient centers, physician groups, payers and other healthcare stakeholders. We partner with healthcare IT vendors that provide healthcare informatics solutions.
Large Hospitals & Health Systems
X-Plain offers several solutions to help hospitals reduce readmission, improve patient satisfaction, save staff time, and support meaningful use. The most common X-Plain solutions for hospitals are:
- To support meaningful use: X-Plain for EMR.
- To engage patients beyond the point of care: X-Plain for Patient Portals.
- To improve community service and market visibility: X-Plain Health Encyclopedia for Websites.
- To provide population health services: X-Plain for Wellness.
- To mitigate malpractice liability: X-Plain Patient Education & Documentation System.
- To engage all patients and reach those with limited literacy skills: X-Plain for Tablets.
• To improve patient experience: X-Plain for Bedside.
Hospitals can subscribe to any of the above solutions. The X-Plain Enterprise Solution allows a hospital to use a combination of the above solutions or all of them. Contact us for a full list.
- Business model (e.g. product-market fit, strategy & development)
- Financial (e.g. improving accounting practices, pitching to investors)
- Public Relations (e.g. branding/marketing strategy, social and global media)
For more than a decade, our partners have included organizations that provide:
- • Employee wellness programs.
- • Health information kiosks.
- • Health website development assistance.
- • Hospital bedside patient stations or TVs.
- • Hospital CCTVs.
- • Population health services.
Evolving industries that we work with include:
Evolving industries that we work with include:
- • Patient engagement companies and call centers.
- • Telehealth.
- • Care management.
- • Electronic medical records.
- • Online medical consultations.
- • Patient care.
- • Patient portals.
- • Point-of-care tablets.
Over the past 24 years, our clients have included a variety of public health stakeholders, such as:
- • Community health centers.
- • Drug stores.
- • Medical device manufacturers.
- • Patient-Centered Medical Homes (PCMH).
- • Pharmaceutical companies.
- • Public Libraries.
- • Rehabilitation centers.
- • Religious organizations.
In order to move faster in changes we do need partners through open innovation actions like organizations, hospitals, Ministry of healths, industry, health business or other patient education companies in rare diseases, social innovation industry for other key areas of customer discovery with impact opportunity and human central design thinking .
President