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The life of a rare disease patient is considered lesser, less valuable than others. Because rare disease patients and their families spend more of their lives trying to solve the problems related to their diseases than they do living. Whereas quality of life, is being able to think less and less about the disease and more and more about the dreams. 

And our idea will help you to bring more life into your days. 
Because quality of life, is you not living 24 hours for the disease.
The platform will also generate an unprecedented and complete database on rare disease patients in Brazil. 

This will help in the development of new solutions for rare disease patients in the country.

Inspired by airline mileage platforms, we will create a platform that will mediate the needs of patients with the willingness of people and companies to make donations.

Through vouchers given by clinics, transportation companies, medical supply companies, food companies, and others, we will make vouchers available that can be purchased for airline miles or money.

The CDD will be responsible for the financial transactions and for the access of people to each of the services based on the urgency, need, and priority of each one. Thus, forming a single list, as happens in the transplant waiting list.

The idea is for people to spend less time with the disease and more time with life!

For example, currently an MRI exam through the government health system takes up to 18 months to be performed. There are diseases that require these exams every 6 months. On the platform people and companies can pay for exams for others who are accumulating their miles on the application. In addition, people with rare diseases will be able to share their personal solutions to daily challenges, making it easier for other people with the same difficulty to shorten their journey to quality of life.

The platform will also generate an unprecedented and complete database on rare disease patients in Brazil. 

This will help in the development of new solutions for rare disease patients in the country.

CDD has direct contact with the rare disease community. We realize that people living with these diagnoses are people in need:

Quality information
Welcoming from society in general
Welcoming by health professionals
Support for the family of the person diagnosed, because many need to stop working to take care of the patients.

We currently have the technical capacity to develop the project and believe that it can solve day-to-day challenges for those living with a rare disease, however, a project like this requires high funding to get started and we have a long-term continuity plan.

Today CDD is one of Brazil's leading and most respected patient organizations connecting with people with chronic disease conditions. Our team consists of 32 people who are experts in their fields to carry out awareness and advocacy work.