Vanessa Boulanger

Executive Director of Strategic Partnerships, Amyloidosis Research Consortium

As the Executive Director of Strategic Partnerships, Vanessa works with a variety of stakeholders to build collaborative relationships and innovative initiatives that meaningfully benefit the amyloidosis community. By establishing sustainable pathways for community-led partnerships with researchers and clinicians, Vanessa aims to collectively shift engagement practices and support the translation of research and innovation into meaningful, accessible, equitable, and actionable outputs for patients. Vanessa brings over 15 years of experience centering cross-sector collaboration in pursuit of health and social equity to her position at ARC. She currently is an appointed member of the Patient-Centered Outcomes Research Institute (PCORI) Advisory Panel on Rare Diseases and prior to joining ARC was the inaugural Director of Research at the National Organization for Rare Disorders (NORD).

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